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Tuesday, August 22, 2017

This is my life's philosophy.

So there's this guy.  He's an 'Evangelical.' He's been on TV spouting something or other that can't possibly be true, for like, longer than I've been alive. As far back as the 1980's, when he swindled a bunch of little old ladies et. al. out of $150 million.  And he did other stuff.  Like serve 5 years prison time for it.  Then he was partly exonerated and went right back to his ministry.  Just so we're clear, I know who he is, and most of you probably do too. I don't need to say his name to make my point.  

So, here's the current situation:  Mr E, we'll call him, is preaching to his followers about end times and nuclear winter and prepping for armageddon.  He is marketing doomsday kits.  He is blaming our former president for the eclipse.  He is praising the new president as the only solution, and he's saying that all of this is prophecy.

So, not only is this stuff not biblical; it's not remotely scientifically possible.  God doesn't just cause an eclipse. Well I mean, he can....but he set things in motion to perpetuate eclipses.  Mathematics and physics can calculate all past and future astronomical events for millennia. And before you throw in the argument on prophecy, I don't know it all, but let's just say I got a guy.  So, I am not talking about God's timing here.  Besides.  My 'Guy' and also my Bible, have told me that since the Cross (See Bible: Matthew, Mark, Luke, John), God's judgment was laid on His only Son for the salvation of the world.  So unless, like I said, there's a prophecy which pertains to a natural, quantifiable (again: for millennia, past and future) phenomenon which would really and truly be about one president or another, It's a pretty safe bet that this was not a predestined event intended to usher anything in or out.


I agree with those who think this guy is nuts.  One person commented that they love guys like this, because when people see how crazy they seem to be, they just write off that ignorant poppycock religion and all its followers. Except there's a problem: He uses fear and condemnation on his platform because he is ignorant of whatever does not serve his ends. Makes good folks look bad.


I am a Christian believer, but I am neither hateful nor ignorant. So, as a Christian, I feel it is my duty to pray for this man and the many like him who are so terribly and utterly wrong, and who may never have read the Bible to understand it, but only to further their own agenda based on incomplete knowledge that was no doubt passed on to them in the same fashion. It is to pray to my God in heaven that I never EVER presume to know everything there is to know about everything in this world. I pray for peace and comfort for the sick and afflicted among us. I help in little ways if I can. And to be honest, sometimes I suck at it. But I'm only human. 


We humans need to look around us and see all the other humans. We are both strong and frail. We are profound thinkers and blithering idiots. We are brilliant, and yet fools all, at one point or another. God is the judge. He is in control. Whatever he is, in whatever capacity. What we think DOESN'T MATTER in the end. If that is true, and I'm right, I will go to Heaven. If I'm not, I have lived a very honorable life following my God. I am intensely angry about this man and men like him who make believers look like fools because he's missed the entire point of what it means to be a follower of Christ. I would ask you to consider this before you stamp us all damaged goods and toss us aside. Those who really, REALLY get it; what it means to be a Christian? We're on your side. Whoever you are.  

Thursday, September 29, 2016

A look back:

This is what I was going to say yesterday, before my appointment.  

    (PARAGRAPH ONE) I am so VERY afraid. I don't even know what, exactly, I am afraid of.  It could be that I am terrified that I have cancer.  It could be that I am in excruciating pain unless I have taken a strong pain pill and in barely bearable pain then. It could be that I cannot breathe like I should be able to.  It could be that I cannot go 10 steps without gasping for breath. I can barely eat. I can't sleep most nights, and then, not without medicine to help.  I imagine that how I feel is most closely relate-able to Miss Violet Beauregard, (lucky winner of a golden ticket from Mister Willy Wonka!) After she took the three-course chewing gum despite  urging that she not do so, from the man himself, and turned into a blueberry.  It could be that I am going through all of this and people around me are having to lay aside their own lives to help me.  By the way:  To those of you who have already done this, From the bottom of my heart, thank you.      fin.

This is what happened in my appointment.

     The Oncologist has not been sent ANY of my images. I am devastated, and no closer to answers.  I am in pain, angry, and stressed past my maximum.

This is what happened after my appointment.

     I hustle.  With the help of some awesome friends, we got the discs from Calico Rock to my doctor in Fayetteville by the next morning.  Now we had to get the discs from Mountain Home.  They wouldn't send them.  They wouldn't let my husband pick them up.  I had done all I could do.  I was spent.  I updated everyone I had to update and laid down and instantly fell asleep.  I missed dinner.  I hate when that happens.

This is what happened today.

     My best friend drove me to Mountain home to retrieve my images from the Mountain Home hospital.  We made it as far as Flippin before I got a call from my nurse at Fayetteville.  They had received the images, radiology had read them, the Surgeon had seen them, and they know for certain that I need surgery.  They didn't even need the images from mountain home any longer.  I got them anyway.  We went on home to my house in Calico.  I changed clothes, loved on my puppy, and got to kiss my kiddo, both of whom are staying with Meba (Mee Baw) and papa, Michael's mom and dad.

This is what I know to come next, so far.

     We are back in Fayetteville, to bring Emily back home.  Michael will take me home tomorrow so that I can scramble to the best of my ability to get my ducks in a row.  Michael will drive me back on to Fayetteville on Wednesday, the 5th for my pre-op appointment.  The following Tuesday, October 11th, I will undergo an open abdominal laparotomy (from what I know so far) so that they can figure out what is in there and get it out, and let me know what happens next.

See Paragraph One.

Tuesday, September 27, 2016

Captain's Log...Sentimental

So I re - learned a valuable lesson today:

EVEN IF YOU ARE SURE OF WHAT YOU THINK SOMETHING IS, CHECK IT AGAIN.

This actually has nothing whatever to do with the main idea of this blog. However, it may turn out to be good advice on that subject too.  I hope.

So you may have noticed a post entitled "captain's log...Sentimental. It was an accident, but I deleted it.  So, if ever you are looking at a list, and the title of a draft and the title of a post are similar, and you think you are 100% sure you are choosing the correct one to delete, you probably aren't.

So to make a long story very short, I simply said that I'm a little scared about tomorrow, and I really just want to feel well. I talked in that post about how incredibly difficult a time I have had with my health as an adult. So, maybe this scare/whatever will be the thing that gets me on the right track. Maybe getting all of these parts out that don't work, will make the rest of the parts work better.

It also said that I really miss rearranging furniture all by myself, but I very seriously doubt that sentiment is shared by anyone who has to live with me :-)

Love, Kimberly.

It also had this PS: if you feel something is not right with your health or with your body, go to the doctor. DON'T WAIT.

Friday, September 23, 2016

Volume 2 ... Chapter Five

So, now it's Friday, one week ago today.  8:00 a.m.  Pelvic ultrasound with a full bladder.  A full bladder in an already full abdomen is..less than comfortable. They decided that imaging was not accurate enough and went with a TVUS test.  A TV ultrasound is even less than less than comfortable.  If you are reading this, and you are a guy,  I am sorry....and I am only going to say this once:  TV stands for trans-vaginal.  They go up 'in there' with a wand and take images from below instead of above.  There, that's over with.

Anyhow:  That test produced some more accurate results than any of the previous testing.  To recall, we started with an MRI for unrelated back pain and numbness in my foot. This produced results which indicated a 5 cm mass lower left abdomen.  Then a pelvic ultrasound which showed pretty much nothing detailed about the mass because there was too much shadowing.  Then a CT scan which revealed the mass doubled in size in a short two weeks' time.  Then a second CT two weeks later showed thankfully no additional growth.  Blood tests were within normal limits, but with ovarian cancer as a concern, this isn't always helpful information.

This most recent test revealed more of the true nature of the existing mass, and introduced a new one on the other side.  The one on the left is of multiple densities. (concern for cancer) It is very low and out to the left of the rest of the mass/tissue. (not necessarily tied directly to the ovary. (concern for cancer).  It is wrapped around my iliac artery(concern for cancer due to the tendency for cancer to search out an existing blood supply).

Here is a picture of this artery.  It's a big one.  Not a little tiny one.

So the surgeon says the risk that this is cancer IS great enough to send me to a Gynecologic Oncologist.  She could do the surgery and remove everything, but she cannot test and stage it if it turns out to be cancer.  An oncologist can stage during surgery. If I had the surgery here, I would have to heal and await results and then go have more surgery later to address any remaining issues. Click this link to find out how ovarian cancer is staged,

I obviously pray that this is not cancer. But I am also a realistic person, and want to be as informed as possible about my condition, care, and outlook.  If you are reading this, and you are facing the unknown, please seek knowledge, and plan for the worst while working hard to achieve the best.  I have 4 days to go before I meet my surgeon.  Meanwhile:

Pain is a terrible burden to bear, 
I know it won't kill me and though it's not fair, 
I can manage, but it takes all my energy.
I'll be grateful when pain is a memory.

Thursday, September 22, 2016

Volume 2 ... Chapter Four

The surgeon called me in a refill for the pain medicine, but in my agony and stressed state, I forgot to ask for something to help with the nausea.  So after a weekend of trying to go with just the half pills, I called the nurse line again.  They recommended that I call the doctor and ask for the medicine I need, but that if that doesn't work out I can still go to the E.R. if needed and it won't cost me a copay.
So I call.  They take my information and say that the doctor on call will get back with me shortly.  I am not prepared for what happened next.  The phone rang.

Me:  "Hello?"

Dr. On Call:  "This is Doctor [OnCall]....

Me: "uh....I....uh....need to get some medication for nausea to go along with my pain medication since I am having trouble with...uh....nausea..."

Dr. On Call: "Just take half a pain pill.  Call your doctor tomorrow."

Me: "Okay."

I hang up the phone.  Michael walks into the bedroom in just enough time to see me lose all control.

You: "What the heck just happened?!"

Time for a story:

Once upon a pregnancy, 
11 years ago, 
Dr. OnCall was my Doctor. 
And many of you know

That I was very, very sick
And in a panic crying.
Dr. OnCall wasn't worried
And both of us were dying.

The doctor who delivered us
(Yes, both of us were saved)
Said if one more day he'd put me off
Would have sent us to the grave.

I cannot put into words the emotional trauma that caused me.  I have never been the same since.  So, when I heard his voice, it instantly triggered a violent emotional response.  I had a terrifying panic attack.  Once it partially subsided, I called Michael's mother and she agreed to take me to a different E.R. the next morning.  I was so afraid that Dr. OnCall would be the one to see me that I wouldn't dare go to Mountain Home.  

So, I went to the E.R. in Batesville.  They were attentive, compassionate, and by heck they were going to listen to me.  They asked if I wanted something for pain control.  I sternly said that I was not there for pain medicine.  I was there for answers.  After reassuring me that I was on the right path, they did x-rays and gave me some more information.  They prescribed something for the nausea, and did give me an injection to try and calm the nerves that were so disturbed and raw.

Tune in next post for the results of the second pelvic and TV ultrasound.

Volume 2 ... Chapter Three

Meanwhile, Back with the surgeon:

Surgeon:  "So, what's going on?"

Me: "I am in a lot of pain and have a mass lower left"

Surgeon: "Uh Huh.." (reading my history on her computer)

Me: "blah blah, blah blah blah, yadda yadda." (what the doctor hears)

Surgeon: "Uh Huh..." (looks up) "So, if you have had a cyst since 2014, why is it suddenly hurting you now?  I mean, I see that you have had several abdominal surgeries.  I can go on in there and dig around if that's what you want me to do, but if I do that, there'll be more scar tissue.  And you NEVER want to get rid of your ovaries early if you can help it. Bone loss."

Me: "WAIT.  (crying) Are you telling me I have had a tumor in there for two years and no one told me?!  I have to say, I'm blown away.  I don't believe that.  It can't be right." (still crying)

Surgeon:  "That's what it says here.  'Mass unchanged since 2014.'"

Me:  "No.  Mass unchanged since last CT.  That was 2 weeks before. not 2 years."

Surgeon: (a bit more courteous) "Let me have a look at something here.  Oh, I see.  The ER doctor messed up.  I am sorry for being so matter-of-fact.  But this is serious. let's do a pelvic exam."

Me: "It's okay." (clearly it's not.  I get ready for the exam and the doctor comes back in.  The exam is so painful that I cannot speak to answer her questions.)

Surgeon:  "I think we need to get a better idea what's in there.  Let's get you scheduled for an ultrasound [again] and do some bloodwork to look for tumor markers.  Some of your symptoms are concerning me for ovarian cancer."

The test is scheduled for TWO WEEKS later.  I am devastated, in terrible pain, and afraid.  I can't even go to the lab on foot.  Mom is pushing me in a wheelchair. (and running me into EVERYTHING) The next day the doctor's office calls to say that so far the blood tests are normal.  They have a cancellation for ONE WEEK later, so to come in for that appointment. My pain isn't my only symptom.  The rest are:
  • Bloating/Abdominal heaviness
  • Feeling full when eating/loss of apetite
  • Constipation
  • Pelvic/Hip pain
  • Constant need to pee, but very little pee
  • Nausea
  • Low back pain
  • Unintentional weight gain (20 pounds in 2 weeks)
  • Unintentional weight loss (lost 10 pounds in the last three days)

Symptoms of Ovarian Cancer:
Signs and symptoms of ovarian cancer may include:
  • Abdominal bloating or swelling
  • Quickly feeling full when eating
  • Weight loss
  • Discomfort in the pelvis area
  • Changes in bowel habits, such as constipation
  • A frequent need to urinate
Stay tuned for the next chapter.

Volume 2 ... Chapter Two

Results of the CT Scan recommend surgery.  I am in a lot more pain than I have been.  NP gave me Tylenol3, which doesn't touch the pain, and makes me too sleepy to work.  I hear from the Surgeon's office, and they tell me that it will be more than 2 weeks before I can even see the Physician's Assistant. (!?!)  I am in ever-worsening pain and am starting to get scared.  I call my insurance company's 24/7 Nurse Help line.  They recommend I head to the emergency room right away.  My wonderful Mother-in-Law comes and takes me in.  It has been 2 weeks since the CT scan and I just know that this mass is bigger still.

Note:  My wonderful mother is upstairs in surgery, having been diagnosed on Tuesday of the same week with breast cancer.  She is scared.  My dad is scared for her.  Now he and the rest of the family are worrying about me, too, which really only makes me mad. [Fast forward a little bit: her cancer had not spread to the lymph nodes, and she will not have to have chemo.  She will start radiation in about three weeks or so, and is back to work, and busy taking care of other people again.]

So, back to the E.R. They do another CT scan to see if there has been any change.  There hasn't. Except my pain level is increasing. They give me something stronger for pain and send me home to wait for my appointment.  I am feeling sick to my stomach by the time I get home.  So I can only take half a pain pill.  The whole pain pill isn't helping much with the pain.  In fact, between the pelvic pain and the back pain, I am walking with a cane just to stay steady on my feet.

I finally make it to the day of the appointment with the Physician's assistant, and she decides I really need to see the Surgeon, who agrees to see me right away.  This does not begin well.